epilepsy

Kerri

Purple Day for Epilepsy: 26 March

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purple ribbon sketch with Purple Day 25/03 written on top

Purple Day for Epilepsy artwork by timeywimeystuff13 on DeviantArt

While seizures can be scary, knowing what you are dealing with can help. Epilepsy is a neurological disorder that causes seizures, and it affects about 1 in 100 people in the UK. [1] A seizure is the result a sudden burst of electrical pulses in the brain which cause muscles to contract and release involuntarily—epilepsy can onset at any age. [2]  While epilepsy can occur after another medical problem—such as a traumatic brain injury, an infection (like meningitis) that affects the brain, or stroke—as well as if a baby is oxygen deprived during birth—about half the time, doctors do not know what causes a person’s epilepsy [1]

It can be scary to witness someone having a seizure. To learn more about what to do if someone you know, or encounter, is having a seizure, check out this link to Epilepsy First Aid from Epilepsy UK. It is most important to ensure the person is safe, and depending on what type of seizure, that they do not injure themselves. Being a source of comfort and providing care while a person comes out of a seizure is also an important role, to alleviate any confusion that they may be experiencing or questions they may have about what happened. There are many different types of seizures, so if you know someone with epilepsy, they may be able to tell you what to look out for, as seizures are not always of the tonic-clonic (formerly known as “grand mal”) type. You can learn more about different types of seizures from the Epilepsy First Aid link above, or from Epilepsy UK’s website.
People with epilepsy usually take medicines to decrease their seizures—sometimes when people do not respond to the medication, they may require surgery on their brain or vagus nerve which has a role in seizures. [1] Mainly for children, a special diet may assist in decreasing the frequency of seizures. [1] this is something that has been helpful for Caitie, a young woman with epilepsy that we interviewed on the US My Identity Doctor blog last year. Be sure to check it out to learn more about how it might affect someone on a personal level.
 
No matter what type of seizures you have, wearing an epilepsy medical bracelet or necklace can be important. Purple is the colour of epilepsy awareness, and we have lot of purple medical awareness jewelry that can keep you safe and help raise awareness of epilepsy at the same time.  World Purple Day for Epilepsy is March 26, so wear purple to show your support for those living with epilepsy.
Kerri

Tag your bag for the journey: Medical bag tags

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If you’re an avid traveler, you know the importance of keeping tags on your luggage. One trip, I could not for the life of me find a luggage tag in my house! Fortunately my suitcase made it successfully through both flights, but I can’t say I wasn’t just a tiny bit nervous because it seemed like I was tempting fate! But, how well do you identify your medical items as yours?
 

medical bag with red ID tag

Certain items, like blood glucose test kits, zip cases for medications, oxygen tanks or compressor bags and CPAP machines, wheelchairs or walkers, or nebulizer compressors are important, especially when travelling. Any bags that contain medical supplies should be readily identified so that if they are lost, the urgency to return them and their contents is known. Our red medical ID key chains also double as excellent bag tags. I have one attached to my nebulizer bag—if someone finds it somewhere and does not know what it is, they will at least know that it is medical equipment, and hopefully take it somewhere where they will find a way to contact me and return my supplies! 
 
Most of us are very careful with our medical equipment—but, especially in the hustle and bustle of travel, things happen. By outfitting your equipment or medication bag with a medical tag, such as our bright red ones, you can have the peace of mind that anybody who finds your bag can get it back to you. A tag can also help people identify where to find the medication that you might need if you cannot get to it yourself. Our tags come in both plastic and aluminum versions, as well as a red-emblem stainless steel version. While all of our products are light, I have the plastic red tag on my nebulizer bag—it’s low profile and stays out of my way, but is bright enough to see when needed. Since this small carry bag for my neb stays within my carry-on bag most of the time, I don’t test the tag’s durability too much; however, if you are really rough on your bag (like I am on my backpack!) you may prefer the aluminum version for your journeys.
 
And, unlike those those paper-insert plastic tags that sometimes only last one trip on your suitcase before the plastic cracks, these sturdy little tags will hold up to whatever you throw at them, just like the rest of our products. 
Kerri

Tips for Halloween Safety

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jack-o-lantern-pumpkins-11288879970iUJPIt’s coming up to Halloween time, and that means trick-or-treaters will be storming the streets. Here are some quick tips from My Identity Doctor to help you and your kids have a safe and healthy halloween.
  • Be bright. Glow sticks, reflective tape, and flashlights added to costumes can help kids be more visible. Wear bright coloured costumes to help out—while they might not be as scary, not much is scarier than a car coming at you unexpectedly!
  • If pets are walking around with you, they may be easily startled, and should also have something bright attached to them to stay safe.
  • Stay outside. Remind kids never to go inside a stranger’s house on Halloween night.
  • Check candy. Remind kids never to eat candy before they get home. If they really can’t resist, send some safe candy from home with them for their adventure.
  • Read labels. If your child has food allergies, ensure you read all candy labels or contact manufacturers. Have safe candy at home for them to have a treat while you’re checking their candy.
  • Be mindful of medical needs. If your kids have medical conditions, ensure you’re prepared for anything that might arise when you’re out—such as high or low blood sugars for kids with diabetes, seizure disorders, fatigue, or asthma (bonfires or exertion might cause symptoms). For kids with autism or other sensory issues, having another parent or adult along—whether collecting candy individually or in a group—might help to keep your child safe in a time that might be full of sensory overload. Another adult can help you keep an eye on the child with autism, or allow you to take an overwhelmed child home and allow others in the group to keep going with supervision.
And of course, our Medical ID products from My Identity Doctor compliment any costume—mix your fun with safety for a lower-stress night out.
Kerri

Living Fully with Epilepsy: Staying in Control with a Seizure Disorder

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Epilepsy affects just under 1 percent of people in the UK—1 in 103 people in the UK live with epilepsy [1]. If you want to learn more about epilepsy, check out this blog post where we interviewed Caitie, a young woman living with epilepsy that is currently well controlled. Like Caitie, if you have epilepsy, you’re probably used to the precautions you have to take to stay safe, as well as educating people about your condition, including how to recognize the type of seizures you have, and what to do if you need help.

One of our newer items, the Purple Awareness Bracelet–a great choice for someone supporting a person with epilepsy. Wear one of our Medical ID bracelets along with this if you have epilepsy!

Sometimes, though, it sucks to have to talk about your medical condition all the time, and you just want to keep it on the down low. For people with a seizure disorder, like epilepsy, it’s important to be prepared, but also ensure those around you know what to do—when you need help, and when to just make sure you are safe if you have a seizure. This is why it is important to wear a medical ID bracelet at all times if you have epilepsy—to stay safe, and to alert others—see our styles here!
A medical ID bracelet can be used to communicate with others when you can’t. You can even include brief instructions of what bystanders can do to help you, if necessary. For instance “Seizure disorder (or epilepsy) – Call 911 if not recovering after 5 minutes,” or any medicines you may need administered by a paramedic, or trained caregiver, and where they may be stored (such as your pocket, bag, or backpack). For kids with epilepsy, it is also important that they wear medical ID jewelry to school, as they may encounter a variety of people during the day who will have varying levels of understanding about their medical needs. In the case of epilepsy, medical alert jewelry certainly speaks when you can’t, and when you need to most!
Jon

How to Stay Safe with Haemophilia?

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what is haemophiliaThere are plenty of diseases out there just waiting to infect your body. Learning how to manage these diseases is always a good practice to learn. What happens if you have already contracted the disease and need to learn how to live and stay safe with it? Luckily, there is plenty of information out there that shows you just how to do that.

There are even incurable diseases that one can learn to manage, Haeomophilia being one of those diseases. Haeomophilia is a terrible disease that makes it so the body is not able to clot blood. If you were to get a cut, for instance, Read More…

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